Samson Patience: Using Music to be Heard and Recognized
Meet Samson Patience, the Rapper-Cum-Songwriter from Taraba Living with Albinism
Albinism affects the production of melanin, the pigment that colours skin, hair, and eyes. As a result of albinism, those with the condition have a reduced amount of melanin or no melanin at all. This lack of melanin can then lead to issues with hyper-sensitive skin and poor eyesight. Samson Patience, who also goes by the stage name Nicole, is a fast-rising rapper, and songwriter living with Albinism from Taraba in Nigeria.
Unfortunately, growing up with albinism often comes with its fair share of discrimination and bullying due to a lack of information and the condition’s physical representation. And, Samson Patience knows this all too well. Speaking about her childhood experiences, Patience explains, “growing up was really rocky and hard, frankly. I had the best support system from my family and I wasn’t the only albino child, so it was so much easier to feel accepted. However, I never really had any childhood friends and most kids thought I was a weirdo and therefore disliked me. That rejection was painful.”
Fortunately, creativity is a driving force for this young rapper, who found her voice through music. The 19-year-old now uses her voice to speak to society and prove that disabilities do not equal inability. Speaking of what inspires her to write music, she says, “My inspiration is my strong desire to be heard and recognized,” said ‘Nicole’.
However, the greatest challenge she has faced through her journey was learning to love herself and building self-esteem. The stigmatization that the blossoming music star faced in her early years her life made her feel that she wasn’t good enough, and made her question whether her music would be shunned. But, she persevered and her resilience has allowed her to change that narrative and serve as a shining example to those dealing with disabilities and albinism, “Right now, I feel like no challenge is bigger than me. I can handle anything. So, whenever I get people staring at me awkwardly, I smile and just enjoy the moment.”
Listen to Dis’: Disability-Led Arts Organisation
Listen to Dis’ are the inclusivity-focused, disability-led arts organisation championing disability culture through art and performance
Listen to Dis’ is a registered non-profit community arts organisation that champions disability culture through the medium of inclusive art and performance. Their work manifests in many forms including workshops, artist series and theatrical touring, and everything has an underlying message to support and empower the global disabled community.
Here we highlight how Listen to Dis’ is bringing this message to life:
Listen to Dis’ VOICE
Listen to Dis’ VOICE is a weekly open-access program where artists join forces to learn, create, explore, and connect. The focus topic changes each week yet is always in keeping with the Listen to Dis’ core message of advocating for the disabled community. Through this profound program, Listen to Dis’ has created some truly important work surrounding ableist ways disabled bodies and minds are viewed.
The Other Ordinary
The Other Ordinary is Listen to Dis’ touring crip theatre company. Launched out of a class at the University of Regina named Devising Inclusive Theatre, and directed by Listen to Dis’ founder and artistic director Traci Foster. Dubbed TOO, it fosters the talents of emerging professional artists that produce tour shows with a focus on how it feels to live and work as disabled people.
Take their first show, ‘Neither Heroes nor Ordinary People,’ as a prime example, which uncovers the realities of living with disabilities through music, monologue, dance, beatbox, and singing. Their second show, Mine to Have, is about sexuality, sensuality, disability, and
the political right to live in one’s body.
Visiting Artist Series
LTD’s visiting artist series connects disabled artists with the wider arts ecology by inviting artists, both disabled and not, to host workshops that explore disability art. Inviting artists from outside the LTD’s group enables LTD’s network to expand but also ignites deeper learning on both parts of the essence of disability culture and mindset.
LTD’s is amplifying the voices of the disabled community through a variety of mediums that all celebrate art, performance and culture. Follow their journey on their Instagram here.
Through facilitated dialogue and inclusive art practice and performance, we weave new realities for our members and for the broader community – shifting the way people perceive disability and creating an understanding of and appreciation for crip art, mad art, and disability culture.
The Sensational Museum
‘Using what we know about disability to change how museums work for everyone’ is the tagline for The Sensational Museum
Led by Professor Hannah Thompson from Royal Holloway, University of London, The Sensational Museum is a £1 million pound-funded project by the Arts and Humanities Research Council whose goal is to alter current access methods and introduce a deeper sense of inclusivity within the museum sector in the UK.
Thompson is joined by a plethora of professionals on this project who unite on the idea that disability needs need to be put at the centre of all museums’ strategies going forward. There is Social Design specialist Anne Chick from the University of Lincoln; Psychologist Alison Eardley from the University of Westminster; and Museum Studies expert Ross Parry from the University of Leicester. They will work together between April 2023 and July 2025 to really transform the way disabled and non-disabled people interact with the art and each other in museums in the future.
Collaborating with museum staff as well as disabled and non-disabled visitors, the more-than-equipped team will be looking into two core areas: new ways of accessing museum collections and cataloguing objects in a more inclusive way. The key idea is to acknowledge and put into practice the fact that the needs of diverse visitors are all unique and not everyone absorbs art in the same way. Sector organisations include VocalEyes, an initiative that works towards inclusion for the visually impaired and blind in the arts and heritage sector, Curating for Change which helps create career paths for the disabled community, and the Museums Association, a membership organisation that campaigns for socially engaged museums. They will all be on hand to offer acute advice and inspiration as to how this project can create innovative change within museums across the country.
“Many people want or need to access and process information in ways that are not only – or not entirely – visual. But museums are very sight-dependent places. Let’s imagine a museum experience that plays to whichever senses work best for you. The project aims to give all visitors inclusive, engaging, enjoyable and memorable experiences,” Professor Hannah Thompson.
Visit The Sensational Museum website to stay up-to-date with this project and how it’s developing. It has the capacity to create real social justice and impact the disabled community and how they will be able to engage with art in a more inclusive way in the future.
Adaptive Kidswear: Get to Know What’s Available Online
Marks and Spencer, Tubie Kids and Seenin are just a few brands investing in adaptive kidswear
Both big brands like M&S and Etsy as well as more emerging companies like Seenin and Tubie Kids are innovating within the adaptive kidswear market. Whether clothes, accessories or shoes, companies are re-designing everyday items to suit multiple disability needs. Blending fashion with function, here we highlight how each company is approaching this movement.
Special Kids Company
The Special Kids Company was founded by Sasha Radwan, who spent time in the Middle East, only to see first-hand how children with special needs were hidden from society’s view there. This inspired her to launch her company, which stocks multiple brands of adaptive wear for kids. Featured on her online store are Scratch Sleeves dungarees, specially designed adaptive clothing for children with autism, eczema and post-surgical healing. And there are wheelchair accessories by brands including Bundle Bean and My Buggy Buddy. Think organisers, cup holders and those all-important rain covers.
Founded by Lucy Carr-Seaman, whose daughter, Hester, was born with a rare agenesis of the corpus callosum named Aicardi syndrome, Seenin is the answer to Lucy’s struggle to find exactly what she needed to make Hester and her life more comfortable. Seenin stocks everything from aprons and bibs to seamless socks and weighted blankets. There’s also a sweet kerchief range that can be designed by the shopper. The style fabric, colour and print can is all bespoke.
Tubie Kids focuses on adaptive clothing and accessories for tube-fed children. This innovative company provides beautifully designed, colourful, tube-friendly yet functional clothing that gives children the full dignity and sensory comfort they need and deserve. Their Tubie Kids® 2in1 Combo Tops are especially brilliant, as they are an everyday staple that has flat seams, no label tags, and a discreet opening for abdominal access.
Marks & Spencer
Retail giant M&S also offers what they’ve called a ‘Kids Easy Dressing,’ range. This collection includes hip dysplasia clothes, feeding tube clothing and zip-up bodysuits. They have rethought where poppers need to be placed as well as introduced super-soft materials to stimulate comfort. Sizes start from newborn and go up to 16 years. From pretty patterns to bold colours, as well as useful multi-packs, there is a lot to admire here.
ASDA’s ‘Easy On Easy Wear’ clothing is designed to support kids in working towards independent dressing via items like pull-on school trousers and ‘Easy On’ 2-in-1 school pinafores where the shirt is attached to the skirt. They have also done their research on sensory-kind fabrics and offer a range of items from sweatshirts to polo shirts that help comfort kids throughout their day.
E-commerce company Etsy hosts an abundance of independent brands and designers that have created adaptive clothing and accessories from first-hand experience. From tube feeding vests for 1-14-year-old boys and girls to adaptive trousers with side zippers and pyjamas with a back zipper, there is a lot on offer that will hopefully make the lives of parents and children living with disability or illness a touch more comfortable.