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Interview with cerebral palsy blogger Heather Monger

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According to disability charity Scope, cerebral palsy affects about one in every 400 children in
the UK.

It is a condition that affects muscle control and range of movement in many different
ways that can be painful and uncomfortable. Those living with cerebral palsy can ease
symptoms through physiotherapy that focuses on strength and flexibility exercises.

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Some specialists also advise heat treatment, massages and speech therapy, depending on the severity of the condition. All these types of therapies are encouraged in the hope to enable more independence and balance in the lives of the person experiencing the condition first-hand, as well as their family.

Like any disability, each person living with cerebral palsy experiences it in their own way. And we’d like to share Heather Monger’s experience who has a uniquely positive and inspiring outlook on life. Heather blogs about her everyday life living with cerebral palsy on her Instagram page, and spreads awareness about charities and awareness days that further the reach and understanding of this condition.

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Her happy, smiley face is featured frequently alongside witty memes like ‘Walking is so yesterday,’ which make her followers not only giggle but see that having a disability doesn’t have to be all gloom and doom. While many people living with cerebral palsy will experience low days, Heather highlights how many days can also be happy, stimulating and fulfilling.

“Cerebral palsy is in everything I do,” says Heather. “It’s like a dark shadow following me around in every thought I have or move I make as I have to make sure everything is accessible to my electric wheelchair.” Heather started blogging during lockdown in 2020 as she thought it would be a positive thing to do and other people living with cerebral palsy may be having similar feelings. “I thought getting my thoughts and feelings out on “paper” would also help others during a very difficult time in our lives.”

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During this period and also more recently, Heather has taken part in social disability activism, speaking with BBC Radio 4 about the need for increased accessible housing. “I have discovered that I am braver and stronger than I thought. I have a fire in my belly for the rights of disabled people,” she says. “We deserve to get the right care packages and work opportunities and have the same enjoyment as everyone else on a day out.”

“I take inspiration from everyone around me,” Heather explains on a final note. “Everybody has a story to tell. I don’t see myself as inspirational, I just get on with life living independently with support.” And that shows her beautiful spirit precisely.

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Follow Heather on Instagram for inspiration on how to live well with a disability.

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Entertainment

His Sickled Journey: A Must-Watch on Generation Black TV

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His Sickled Journey is a short film being shown on Generation Black TV. This compelling narrative follows Femi, a serial over-thinker, as he learns the ins and outs of sickle cell anemia to support his new girlfriend, Chanice. The film highlights the importance of understanding and empathy in relationships, especially when dealing with chronic illnesses.

The Storyline of His Sickled Journey

In His Sickled Journey, Femi is happily coasting in honeymoon avenue with his new girlfriend, Chanice. However, his anxiety begins to rise after she reveals that she has the genetic condition sickle cell anemia. Determined to be there for her, Femi decides to learn everything he can about the condition. As he undergoes this journey, he grows closer to Chanice, but his overthinking ways threaten to sabotage their budding romance.

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Inspiration Behind His Sickled Journey

The concept for His Sickled Journey was inspired by Her Sickled Journey, a personal blog about sickle cell awareness founded by Tito Oye. Tito is a 23-year-old London-based tenancy manager and lover of life. She has always had a passion for helping others and writes to help people realize that sickle cell doesn’t need to define their entire identity. Her blog serves as a beacon of hope and education for those affected by the condition.

Meet the Cast: David Ajayi

His Sickled Journey stars David Ajayi, a British-born actor with Nigerian heritage. Raised in South London, David studied Accounting & Finance at Coventry University before training at Identity School of Acting. In addition to acting, David is a writer, presenter, producer, and director, known for the comedy web series Minister in Training and the short film series Moments. He also has a music persona known as Gbenga De Rapper.

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Watch His Sickled Journey on Generation Black TV

His Sickled Journey is more than just a film; it’s an educational experience that brings awareness to sickle cell anemia. Generation Black TV is committed to showcasing diverse stories that resonate with a wide audience. By watching this film, viewers will gain a deeper understanding of the challenges faced by those living with sickle cell anemia and the importance of support and empathy in relationships.

The Impact of His Sickled Journey

His Sickled Journey not only entertains but also educates its audience about sickle cell anemia. It’s a powerful story of love, understanding, and overcoming personal fears. The film’s portrayal of Femi’s journey to support Chanice highlights the importance of learning about and understanding chronic conditions to build stronger, more empathetic relationships.

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Don’t Miss His Sickled Journey on Generation Black TV

His Sickled Journey
His Sickled Jouney

Tune in to Generation Black TV to watch His Sickled Journey. This short film promises to deliver a heartfelt story that will leave a lasting impact. With its strong performances and meaningful storyline, it’s a must-watch for anyone interested in stories about love, empathy, and personal growth.

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EU’s New Disability Cards Ease Cross-Border Travel for Individuals with Disabilities

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The EU disability card is a recent effort from the European Union, which has a long history of upholding inclusion and human rights. This card, which is intended to empower people with disabilities, is poised to transform cross-border travel for people with disabilities and guarantee that everyone can enjoy the richness and beauty of Europe.

Comprehending The European Union Disability Card

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The EU disability card, a ground-breaking instrument that provides a plethora of advantages to its holders, is at the center of the EU’s inclusion initiatives. This card gives you priority access to transportation, tourist attractions, and cultural institutions throughout all member states, making it the key to seamless travel experiences.

The EU Disability Card’s Advantages

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The advantages of having an EU Disability card are numerous, ranging from useful features like lowered admission costs to necessities like help and support. It’s a daring step toward equality, making sure that a disability doesn’t take away from the excitement of discovery.

Qualifications And Application Procedure

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The comprehensive qualifying requirements for the EU disability card are made to accommodate a wide range of disabilities. The EU’s commitment to accessibility is shown in the application process for the disability card, which is a simple process that allows all qualified individuals to enjoy travel freedoms.

Improving Cross-Border Mobility For Person With Disabilities

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The creation of the EU disability card is a shining example of advancement for disabled people traveling inside the EU. It removes administrative and physical obstacles to create a travel experience that is easy and dignified.

Accessibility And Disability Rights In The EU

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The EU disability card is a bold assertion of disability rights in the EU, not just a tool for easier travel. It transforms the long-advocated EU principles of the United Nations Convention on the Rights of Persons with Disabilities into concrete travel benefits.

EU Disability Card
EU Disability Card

The Effect On Accessible Tourism In The EU

The EU disability card has significant knock-on effects for accessible travel inside the EU. It serves as a catalyst for change, forcing the travel and tourist sector to reconsider and improve its accessibility features. This not only improves the vacation experience for those with disabilities but also points to a change in the tourist industry toward greater inclusivity.

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A Heritage Of Liberty And Inclusivity

The EU’s new disability card is a symbol of inclusivity and the strength of group will, as well as a significant advancement in accessibility. It is a major win for disability rights in the EU and a sign of the solidarity of the European people in recognizing that freedom and mobility are rights that everyone has, not just some.

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This card has the power to change lives in addition to making cross-border travel easier for people with disabilities. It’s a promise of a more inclusive future, a bridge between cultures, and a gateway to new experiences. Around the world, the EU is spreading a message of opportunity and hope as it leads the way in accessible tourism.

The perks of travel are not the only things that the EU disability card has to offer. It is a force for transformation, prompting businesses, authorities, and communities to reconsider their stance on diversity. The card pushes us to stretch our imaginations and see a society in which everyone, regardless of ability, can easily and dignifiedly discover the wealth of our diverse continent.

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As we commemorate the introduction of the EU disability card, we also anticipate the tales of trips undertaken, obstacles overcome, and opportunities gained. This card is more than just a piece of plastic; it represents a Europe that appreciates each and every one of its citizens and welcomes them all.

The smiles on people’s faces, the experiences it makes possible, and the conversations it sparks about the value of accessibility in all facets of life will ultimately be the real indicators of the success of the EU disability card. It’s a step toward a future in which being “disabled” doesn’t imply limitations but rather a new perspective on the wonders that surround us.

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The EU disability card serves as a beacon of progress and a timely reminder that, when we band together for the greater good, we can make the world a more prosperous, compassionate, and inclusive place for all.

Obiosah Rowland

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Alem Mumuni: Pedaling Beyond Limits to Empower Ghana

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From his early struggles as a polio survivor in Ghana to becoming the nation’s first Paralympic cyclist, Alem Mumuni’s journey is not just one of personal triumph, but a relentless pursuit of empowerment for himself and countless others.

Born into a reality where disability was often met with limitations, Alem’s life took a dramatic turn at the age of two when he contracted polio. This left him without full use of his right leg. Yet, Alem’s spirit remained unbroken. Fuelled by the unwavering support of his family, particularly his persistent cousin, he defied expectations. Not only did he learn to walk again, but he also became the first child in his family to step through the schoolhouse doors.

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Despite societal perceptions that often viewed disability as a hindrance, Alem embraced every opportunity. He actively participated in sports alongside his able-bodied peers, discovering a particular fondness for cycling. This seemingly ordinary activity became a source of liberation for Alem, offering him a sense of mobility and freedom that transcended his physical limitations. With unwavering dedication, he honed his skills on the bicycle, eventually setting his sights on the competitive arena of para-cycling.

Ghana
Source: Alem Foundation

Alem’s unwavering determination culminated in a historic moment for Ghana in 2012. He qualified as the nation’s first Paralympic cyclist, earning a coveted spot at the London Paralympic Games. While illness hampered his performance at the Games, his mere presence was a groundbreaking feat. Alem’s participation on the global stage shattered stereotypes, proving that individuals with disabilities possessed immense capabilities waiting to be unleashed.

Returning to Ghana a flagbearer for change, Alem channeled his Paralympic experience into a force for good. He established the Alem Foundation, a platform dedicated to uplifting underprivileged children and families. Partnering with passionate individuals who shared his vision, Alem launched various initiatives focused on creating sustainable solutions for marginalized communities. These initiatives ranged from sponsoring children’s education to ensuring access to clean water and vital healthcare, empowering entire families to break free from the cycle of poverty.

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Alem’s impact extends far beyond individual empowerment. He recognized the systemic barriers faced by people with disabilities in Ghana and became a fervent advocate for inclusivity and equal opportunities. Leveraging his platform and the connections he forged through sport, Alem championed policies and initiatives that promoted a more inclusive society. He envisioned a Ghana where individuals with disabilities were not just seen, but valued, empowered, and given the platform to thrive.

Even as Alem continues to build a lasting legacy, his unwavering commitment extends beyond personal accolades. He remains an inspiration for those facing adversity, a living testament to the power of perseverance. Alem’s story embodies the true meaning of resilience, proving that disability is not a limitation, but rather a catalyst for positive change and boundless potential.

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In Alem Mumuni, we find a beacon of hope, a testament to the transformative power of sport, and a powerful reminder that the human spirit can overcome any obstacle. As he continues to pedal towards a brighter future, Alem leaves behind a legacy that illuminates pathways of possibility for generations to come, inspiring others to push beyond perceived limitations and embrace the boundless potential within themselves.

By: Yahuza Bawage

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If you enjoyed reading this article, be sure to check out this other fascinating piece!

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