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Empowering Reads for Individuals with Disabilities

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Books have the power to transport us to new worlds, inspire us, and provide valuable insights into the human experience. For individuals with disabilities, literature can serve as a source of solace, guidance, and empowerment. Whether you’re seeking personal stories, practical advice, or fictional escapes, here are a few book recommendations that can offer support and perspective to individuals navigating life with disabilities.

“The Diving Bell and the Butterfly” by Jean-Dominique Bauby:

  1. This memoir recounts the life of Bauby, a former editor of French Elle magazine, who, after suffering a severe stroke, became completely paralyzed except for his left eye. Despite his physical limitations, he managed to communicate by blinking and composed this poignant memoir entirely in his mind. It offers a unique glimpse into the power of the human spirit and the resilience to overcome adversity.

“The Curious Incident of the Dog in the Night-Time” by Mark Haddon:

  1. Told from the perspective of Christopher, a teenager with autism spectrum disorder, this novel takes readers on a journey through his mind. Christopher’s exceptional mathematical skills lead him to uncover the truth about a neighbour’s dog’s mysterious death, challenging societal norms and highlighting the beauty of neurodiversity. The book provides insight into the thoughts, feelings, and challenges faced by individuals on the autism spectrum.

“Unbroken: A World War II Story of Survival, Resilience, and Redemption” by Laura Hillenbrand:

  1. This gripping true story follows the life of Louis Zamperini, an Olympic athlete turned prisoner of war during World War II. Zamperini survives unimaginable hardships, showcasing the indomitable human spirit and the ability to find strength in the face of adversity. His story serves as a powerful reminder that even in the darkest of times, resilience and hope can prevail.

“The Reason I Jump: The Inner Voice of a Thirteen-Year-Old Boy with Autism” by Naoki Higashida:

  1. Authored by a young boy with nonverbal autism, this book offers profound insights into the experiences, thoughts, and emotions of individuals on the autism spectrum. Higashida candidly answers questions about why autistic individuals may exhibit certain behaviours, providing a valuable resource for understanding and promoting empathy towards those with autism.

“No Barriers: A Blind Man’s Journey to Kayak the Grand Canyon” by Erik Weihenmayer and Buddy Levy:

  1. This inspiring memoir chronicles the extraordinary achievements of Erik Weihenmayer, who became the first blind person to reach the summit of Mount Everest. Through his incredible journey, Weihenmayer encourages readers to challenge their perceived limitations, overcome fears, and embrace a life of adventure and possibility.

Books have the remarkable ability to bridge gaps, foster understanding, and empower individuals with disabilities. The suggested titles offer diverse perspectives, from personal memoirs to fictional narratives, providing inspiration, support, and a sense of connection. These books offer glimpses into the resilience, strength, and unique experiences of individuals with disabilities, reminding us of the power of the human spirit to triumph over adversity. So, pick up a book, embark on a literary journey, and let these stories inspire and enlighten you.

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Parents Aid Intellectually Disabled in College Degrees

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Self advocacy
https://publications.ici.umn.edu/self-advovacy-online/blog/going-to-college

In her home state of Minnesota, the dream of college seemed out of reach for Jean Hauff, a young woman with Down syndrome. She wanted to pursue a career in mass media, but no Minnesota school offered the intellectual disabilities college programs or specific support services she craved.

Jean faced this troubling reality because Minnesota lacked a system that embraced students with disabilities (ID) within mainstream higher education. Existing programs were limited, offering neither the desired fields of study nor the promise of a fulfilling college experience. This situation caused worry for Mary Hauff, Jean’s mother, who since Jean’s birth has been a champion of inclusive education.

This frustration fueled the creation of the Minnesota Inclusive Higher Education Consortium in 2019. This powerful coalition, composed of parents and disabilities advocates, embarked on a mission to transform the higher education landscape for students like Jean.

The efforts of this coalition made a significant turning point in 2023 as the Minnesota Legislature began to recognize the potential and the right of intellectually disabled students. A significant $2 million was allocated for a period of two years to promote inclusive higher education in the region. This brought smiles to parents whose children struggle with ID, highlighting the importance of parental aid degrees.

The vision is clear: students with ID deserve the same opportunities as their peers – the same range of study options, enriching campus experiences, and the chance to earn meaningful credentials.  Experts believe that a substantial portion of the allocated funds will directly empower colleges to develop innovative methods to attract and support students with ID, providing much-needed college degrees assistance.

Another crucial aspect of this initiative is the creation of a technical assistance center, funded with $500,000 and housed at the University of Minnesota. This center serves as a central hub for expertise, offering best practices on providing inclusive postsecondary education. Students with ID themselves have a significant voice in shaping this center’s direction, with half the members of its advisory committee coming from this very community.

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A past attempt at attending a technical college left Dupree Edwards, a Minnesotan with ID, feeling unsupported and ultimately led him to abandon his pursuit. However, Edwards thrives when given accessible learning materials and a structured environment that caters to his learning pace. The news of the legislation was met with immense joy by Edwards, who aspires to pursue formal studies in performing arts – a dream that now seems achievable thanks to increased disabilities support college.

The Higher Education Opportunity Act of 2008 also laid the groundwork for increased college access for students with ID nationwide. Today, Minnesota joins states like Kentucky, which established a similar technical assistance center in 2020, witnessing a subsequent doubling of college opportunities and disabilities within the state.

Also, institutions can apply for grants of up to $200,000 per year for four years, empowering them to develop or strengthen their capacity to support students with ID. This highlights the importance of inclusive education.

For Jean Hauff, whose college journey took her outside Minnesota due to a lack of suitable options, this initiative holds immense significance. Despite a positive experience at Duquesne University’s pilot program for students with ID, she eventually had to transfer due to program changes.

Now, with this renewed hope, Jean aspires to pursue her education and career goals within her home state. 

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While this groundbreaking investment serves as a beacon of hope for students with ID in Minnesota, many students like Jean feel that with the help of parents and disabilities advocates, it’s possible to go to college and become whatever they dreamed to be.

Written by Yahuza Bawage

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How Spain Rewrote Its Constitution To Empower Persons With A Disability

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The disability rights movement in Spain has long asked that the term ‘handicapped’ be replaced with ‘persons with a disability’, and the country’s constitution was recently altered accordingly. The amendment, voted by a substantial majority in Parliament on January 18, 2024, specifies that public administrations would adopt policies that enable full autonomy and social inclusion of individuals with disabilities.

This is the third time Spain’s constitution has been amended since its adoption in 1978, following the end of Francisco Franco’s tyranny. The previous revisions were enacted in 1992 to allow citizens of other European Union member states to run in municipal elections and in 2011 to meet EU restrictions on public deficits during the eurozone’s debt crisis.

All major political parties backed the constitutional reform, except the far-right Vox party, which voted against it. Pedro Sánchez, the Spanish Prime Minister, welcomed the revision as a “great day for democracy” and apologized on behalf of the country for the delay in making the change. The amendment addressed Spain’s “moral debt” to its four million individuals with disabilities.

Disability rights organizations praised the change, calling it a historic achievement that recognized the dignity and rights of individuals with disabilities. They encouraged the administration to take appropriate measures to implement constitutional principles effectively.

The amendment will now have to be passed by the Senate, which is expected to get similar broad support. Once passed, the new wording of Article 49 of the constitution will be as follows: “The public authorities shall ensure the protection of persons with disabilities, their full autonomy, and social inclusion.” The public authorities must support policies that protect these rights, remove barriers that restrict or impede their full involvement in political, economic, cultural, and social life, and ease access to the services and resources required for growth.

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Unveiling the Literature Talents: Stories of Triumph and Imagination from Disabled Authors

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Many talented authors with disabilities have made significant contributions to literature. Here are a few disabled authors across various genres:

  1. Stephen Hawking:
    • Renowned physicist and cosmologist, Stephen Hawking, had amyotrophic lateral sclerosis (ALS). His book “A Brief History of Time” is a groundbreaking work in theoretical physics.
  2. Temple Grandin:
    • An autistic author and professor of animal science, Temple Grandin has written several books, including “Thinking in Pictures” and “The Autistic Brain,” offering insights into autism and her own experiences.
  3. Christopher Reeve:
    • Best known as an actor, Christopher Reeve became an advocate for spinal cord injury research after a horse-riding accident left him paralyzed. He authored books like “Still Me,” reflecting on his life and advocacy.
    • Helen Keller:
  4. Deafblind from an early age, Helen Keller overcame tremendous challenges to become an author, lecturer, and political activist. Her autobiography, “The Story of My Life,” is a classic.
    • John Hockenberry:
  5. A journalist and former host of NPR’s “The Takeaway,” John Hockenberry has written books like “Moving Violations,” sharing his experiences as a wheelchair user and his perspectives on disability.
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