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My Story: Maddie Gordon

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Maddie’s story is one of extraordinary courage and resilience. When she fell over a loose pavement slab at school, she could not have imagined the impact that it would have on her life. Although she carried on with her day as usual, the pain in her wrist never subsided. She was dismissed from first aid multiple times & only after X-rays, splints, and plaster casts, Maddie was diagnosed with CRPS when the feeling of the cast being cut off my arm felt like electricity burning through her veins 

Complex Regional Pain Syndrome is a chronic condition that affects the nervous system and causes excruciating pain. It’s a condition that Maddie has lived with for almost a decade, and it has affected every aspect of her life. The pain was so severe that it spread throughout her entire body, leaving one of her legs paralysed. At one point, she even had to rely on a wheelchair and assistance from her mother for daily tasks like washing and dressing.

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Despite the physical and emotional pain that she was going through, Maddie refused to let her condition define her. She turned to sports as a way to cope and found a new sense of purpose and belonging. Wheelchair racing gave her a sense of community, while basketball helped her to channel her competitive spirit.

It was powerlifting that gave Maddie a renewed sense of purpose and drive. In just over a year and a half, she has achieved incredible feats, including lifting an impressive 225kg in a seated deadlift. What’s more impressive is that she’s competed against able-bodied rivals and won, proving that disabled people are just as capable as anyone else.

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Maddie is determined to inspire and empower others, especially those who face challenges due to disabilities. She’s currently training to become a personal trainer, with the goal of helping others realise their full potential. Maddie’s story is a powerful reminder that with determination and hard work, anything is possible. She’s a true inspiration, and her achievements are a testament to the human spirit’s resilience.

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Seven Supermarket Chains Under Fire for Introducing Inaccessible Fridges

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In a push for innovation and energy efficiency, seven major supermarket chains including, Aldi, Asda, Lidl, Morrisons, Sainsbury’s and Tesco have introduced new fridges across their stores. While the rollout is being celebrated for its potential to reduce environmental impact, the move has sparked a backlash from the disabled community, who argue the design disregards accessibility needs.

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Many disabled shoppers report that these designs create significant barriers for people with mobility impairments, visual impairments, and other disabilities.

Key Accessibility Concerns

  1. Heavy or Complex Doors
    Some of the fridges feature heavy sliding doors or mechanisms requiring significant dexterity or strength. For those with arthritis, muscular disorders, or limited upper body mobility, opening the doors becomes an impossible task.
  2. Crowded Layouts
    Reports from disabled shoppers also highlight how narrow aisles and tightly packed fridge layouts exacerbate the problem, making it difficult for those using mobility aids to maneuver around these installations.
Inaccessible Fridge

Impact on Disabled Shoppers

Disabled shoppers have expressed frustration, describing the rollout as a step backward in the fight for inclusion. Sarah Johnson, a wheelchair user and disability advocate, shared her experience:
“It’s demoralizing. I used to shop independently, but now I need help with basic things like getting a carton of milk. These designs weren’t made with people like me in mind.”

Others have voiced concerns about the message this sends. Activist Marcus Wong commented:
“These inaccessible fridges highlight a broader issue in retail: a failure to consult the disabled community during design processes. Inclusion needs to be part of the blueprint, not an afterthought.”

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Supermarkets’ Response

Some supermarket chains have issued statements defending the changes. A spokesperson for one chain said:
“The new fridges are part of our commitment to sustainability and energy efficiency. We’re actively seeking feedback to ensure they work for all customers.”

However, critics argue that this response lacks urgency. While environmental considerations are crucial, they contend that accessibility shouldn’t be sacrificed for progress.

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Accessible Fridge

Calls for Action

Disability advocates are urging supermarkets to take immediate steps to address these barriers. Key recommendations include:

  • Consulting with disabled shoppers during future design processes.
  • Implementing universal design principles to ensure fridges are accessible to all customers.

The issue also highlights the importance of adhering to accessibility laws, which often mandate equal access to goods and services.

Conclusion

The introduction of inaccessible fridges by seven major supermarket chains underscores a growing tension between technological innovation and inclusivity. While strides in sustainability are important, they must not come at the cost of excluding disabled shoppers. As calls for accessibility reforms grow louder, the spotlight is on these supermarkets to demonstrate their commitment to serving all members of their communities.

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Disability Rights Campaigners Call for Assisted Dying Legislation

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Disability rights campaigners are urging MPs and peers to support assisted dying legislation. They emphasize that everyone deserves the chance for a good death. This call is led by Tom Shakespeare, a prominent professor of disability research at the London School of Hygiene & Tropical Medicine.

Supporting Terminally Ill Individuals

The group expresses solidarity with terminally ill individuals who seek the option of assisted death. They acknowledge the concerns raised by opponents regarding the value society places on disabled lives. A documentary titled Better Off Dead? by actor Liz Carr highlights these risks. However, Shakespeare and his co-signers argue that disabled people represent a diverse community. Their experiences and opinions vary significantly.

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In a letter to parliamentarians, the campaigners state, “We know some prominent disabled individuals oppose assisted dying. However, polling shows this view is not representative of the majority.” They point to an Opinium poll conducted for Dignity in Dying, indicating that nearly 80% of disabled individuals support assisted dying legislation.

The Right to Autonomy and Control

The letter emphasizes that all individuals deserve a good life and the autonomy to make decisions about their futures. It highlights the importance of independent living. As people approach the end of their lives, they should also have the option for a dignified death, with various choices available.

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The campaigners express concern that too many individuals suffer in pain. They argue that assisted dying legislation is a compassionate response to this suffering. The proposed law in the UK focuses on terminally ill, mentally competent adults. This legislation has not expanded in similar laws in Oregon, Washington, and other US states.

Upcoming Legislative Debate

A private member’s bill, introduced by Labour MP Kim Leadbeater, aims to legalize assisted dying for those who meet specific criteria. The bill is scheduled for discussion next month in Parliament. If it receives initial support, it will undergo further scrutiny by committee members.

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Although the sentiment for assisted dying legislation may have shifted since the overwhelming rejection in 2015, the outcome remains uncertain. The letter has also been signed by several prominent individuals in the disability rights community, further demonstrating support for this crucial issue.

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Election 2024

Voters with Disabilities: Feeling Overlooked in the 2024 Presidential Race

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A new Rutgers University report estimates 40.2 million eligible voters in the upcoming U.S. presidential election are disabled. When factoring in people who live with someone who has a disability, nearly one-third of the voting population is involved. Despite this, many voters with disabilities feel overlooked, especially on health care—a central campaign issue.

A Growing Voting Bloc

As the U.S. population ages, the number of voters with disabilities is increasing. However, many challenges still exist. These include inaccessible campaign materials and the fact that candidates like Donald Trump and Kamala Harris rarely address disability-related issues, such as the ongoing impact of COVID-19. Trump recently made comments at a rally that were viewed as discriminatory by advocacy groups.

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Advocates Demand Recognition

Dom Kelly, founder of New Disabled South, says this voting bloc is essential. “We are their path to victory,” he insists, warning that ignoring this community could affect election outcomes. Matt Mills, a 41-year-old voter from Ohio who has lupus and other health issues, supports Harris for her health policies but still feels disabled voters are often overlooked.

Mixed Experiences with Candidates

Jim Piet and Patricia Vincent-Piet, a married couple from New Hampshire who both have cerebral palsy, have had varied interactions with political candidates. Some have been receptive, while others have not. Their main concern is policy, especially Medicaid, which provides essential support to people like Jim. They plan to vote for Harris due to fears that Republicans may cut Medicaid services.

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Damaging Political Rhetoric

Trump has a history of offending the disabled community, such as when he mocked a disabled journalist in 2015. Recently, he falsely claimed at a rally that Harris was “mentally impaired,” leading to criticism from advocacy groups. Meighan Stone, who uses a wheelchair due to long COVID, emphasizes that the issue goes beyond offensive comments. “We live with this discrimination daily,” she says.

Addressing the Issues

The Harris campaign has taken steps, such as hiring Anastasia Somoza, a disability advocate, as its disability engagement director. Somoza, who has cerebral palsy, has been working to ensure campaign events are accessible, offering virtual options. However, a recent virtual event fell short, causing frustration for voters like Marissa Ditkowsky, who has muscular dystrophy. Technical issues such as missing closed captioning and a sign language interpreter made the event less accessible.

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Ensuring Voting Accessibility

The U.S. Election Assistance Commission is working to ensure voters with disabilities can vote independently and privately. Commissioner Benjamin Hovland stresses the need for better training for poll workers. Training will include ways to assist those with anxiety or who process information differently.

Patti Chang, a blind voter from Chicago, explains that exclusion goes beyond the political sphere. “Society needs to expect more inclusion,” she says. “This issue doesn’t just affect voting; it’s everywhere.”

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Conclusion

With millions of voters with disabilities preparing to vote, both campaigns need to address their concerns. Making campaign platforms accessible and engaging with these voters could have a significant impact on the election.

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